European Reference Network for Rare Inherited Congenital Anomalies (ERNICA)

Project summary

ERNICA is a network of expert multi-disciplinary professionals from specialised healthcare providers (HCPs) across Europe (‘ERNICA full members’).

‘Affiliated partner’ hospitals and their multi-disciplinary professionals also form part of the network.

ERNICA aims to pool together disease-specific expertise, knowledge and resources on rare inherited and congenital anomalies from across Europe to achieve health goals that may otherwise be unachievable in a single country.

ERNICA aims to reduce health inequalities across Europe by standardising practices, facilitating research and making high-quality care, information and resources accessible to healthcare providers, patients and their families/carers across Europe, regardless of where they are located.